Visiopoetics

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting will be this Saturday, September 4 (the first Sat. of the month) at Cville Coffee at 12-noon. Spouses, friends, and family are welcome!

These are informal, open meetings where you can come for the creative ambiance of the only place in town with a climbable turtle and Galapagos Islands mural — and stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical. That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder. We are your community resource for information and support.

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting will be NEXT Saturday, August 7 (the first Sat. of the month) at Cville Coffee at 12-noon. Spouses, friends, and family are welcome!

These are informal, open meetings where you can come for the creative ambiance of the only place in town with a climbable turtle and Galapagos Islands mural — and stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical. That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder. We are your community resource for information and support.

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting will be this Saturday, July 3 (the first Sat. of the month) at Cville Coffee at 12-noon. Spouses, friends, and family are welcome!

These are informal, open meetings where you can come for the creative ambiance of the only place in town with a climbable turtle and Galapagos Islands mural — and stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical. That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder. We are your community resource for information and support.

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting will be this Saturday, June 5 (the first Sat. of the month) at Cville Coffee at 12-noon. Spouses, friends, and family are welcome!

These are informal, open meetings where you can come for the creative ambiance of the only place in town with a climbable turtle and Galapagos Islands mural — and stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical. That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder. We are your community resource for information and support.

Except if you want to climb the turtle, you’re basically on your own.

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting will be this Saturday, May 1 (the first Sat. of the month) at Cville Coffee at 12-noon.

These are informal, open meetings where you can come for delicious coffee, and stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical. That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder. Spouses, friends, and family are welcome! We are your community resource for information and support.

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting will be this Saturday, April 3 (the first Sat. of the month) at Cville Coffee at 12-noon.

These are informal, open meetings where you can come for delicious coffee, and stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical. That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder. (Spouses, friends, and family are welcome!) We are your community resource for information, support, and did I mention the coffee?

Some time ago, I had the bright idea that there should be a relatively open database that rheumatology patients could report information directly into. If you have ever had or known someone with a body, you know that the telephone game of doctors, nurses, and schedulers often renders your medical records unintelligible, inaccurate, and/or full of holes. Take out the middle men, and you get more data. Multiply this phenomenon by a few hundred and you get the idea of how much data is lost among chronic disease sufferers in the American medical system.

Naturally, someone a lot smarter than me already had this bright idea, and they actually implemented it. But I have just discovered the National Data Bank for Rheumatic Diseases. The NDBRD (or the Nada Bird, as I will shamelessly call it hereafter) is currently seeking lupus sufferers in particular to join ongoing research. They need more lupus doctors participating, too.

If you know someone with any autoimmune disorder (such as arthritis, lupus, MS, scleroderma, sarcoidosis, Grave’s, Hashimoto’s, Sjogren’s, or mixed connective tissue disorder), please send them a link to the Nada Bird and ask them to join today. Without gathering information directly from the source — patients! — we got nothing.

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting (previously scheduled for this Saturday) is canceled on accounta Snowmageddon.

We will meet next on the first Saturday of NEXT month - March 6 - at the Gordon Avenue Library at 12-noon. I will reiterate this next month.

In general, these meetings are where you come for tea, and stay to discuss local/regional/larger rheumatology resources, problems, and solutions. Please contact me if you need to discuss some such issue before then.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical. That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder. (Spouses, friends, and family are welcome!) We are your community resource for information, support, and did I mention the free tea.

The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting on the first Saturday of the month at Cville Coffee at 12-noon is coming up this Saturday, Jan. 2.  This year, we will make lots of wonderful things happen for people with lupus and other autoimmune diseases in Virginia.

Come for free coffee, stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical.  That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder.  We are your community resource for information, support, and did I mention the free coffee.

I don’t have the slightest idea how it happened, but it’s that time again.  The Lupus Foundation of Virginia Charlottesville chapter’s regular monthly meeting on the first Saturday of the month at Cville Coffee at 12-noon is coming up this Saturday, Dec. 5.

Come for free coffee, stay to discuss local/regional/larger rheumatology resources, problems, and solutions.

Autoimmunity affects more Americans than heart disease or cancer, and coordination of resources critical.  That’s why these meetings are open to all people who suffer from or are otherwise affected by any autoimmune disorder.  We are your community resource for information, support, and did I mention the free coffee.

Also, please note the gorgeous new LFV website.  It was expertly designed and is now kindly maintained by America’s Next Top Computer Whiz, Kevin Schlipper.